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Living with vision loss in a sighted world

Living with vision loss in a sighted world

Braille might help when reading a book, but it won’t help you read a room! Two moms and a teen share tips on how they cope—or help someone else cope—when somebody in the family has an inherited retinal disease (IRD). Watch video

Disclaimer: The opinions and references found in this patient story belong to the author alone, and do not necessarily reflect the opinions of aSharedVision.com or Spark Therapeutics. Spark Therapeutics is not responsible for the accuracy of any of the information supplied by third-party sites referenced in this story.

Dancing in the dark

Dancing in the dark

Sofia, 13, believes that success rests in the power of perseverance—and elegant pliés, of course. Leber congenital amaurosis (LCA) may be limiting her vision, but it isn’t stopping this young ballerina from pursuing what she loves. Watch video

Disclaimer: The opinions and references found in this patient story belong to the author alone, and do not necessarily reflect the opinions of aSharedVision.com or Spark Therapeutics. Spark Therapeutics is not responsible for the accuracy of any of the information supplied by third-party sites referenced in this story.

One woman's journey

One woman's journey

This mother of two won’t let declining vision, a lack of available treatment options, or the 1.5-mile swim from Alcatraz to San Francisco stop her efforts to support retinal research. Watch video

Disclaimer: The opinions and references found in this patient story belong to the author alone, and do not necessarily reflect the opinions of aSharedVision.com or Spark Therapeutics. Spark Therapeutics is not responsible for the accuracy of any of the information supplied by third-party sites referenced in this story.