Meet the Smedley family:
Mike, Michael, Karissa, Kristin, and Mitchell
Brothers Michael and Mitchell both have LCA, a result of genetic mutations on the CRB1 gene.
Read their story
Meet the Bobnar family
Amber, her husband Esoos, and their son Ivan
Ivan, now 12, was diagnosed with LCA in 2006, a result of a genetic mutation on the CEP290 gene.