Retinal gene therapy research is bringing hope to the inherited retinal disease (IRD) community.

 
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Inherited retinal diseases (IRDs).

The conditions vary, but those with IRDs may face many similar challenges, including night blindness (nyctalopia), declining vision, or blindness at birth. 

See the conditions

Cutting edge science.

Are you following the always evolving field of gene therapy research? Deepen your understanding of how researchers are approaching IRDs in this fascinating field.

See how the science works

Pinpoint your mutation location.

Science can now decipher which gene is responsible for causing a number of IRDs. Here’s a simple overview to help you understand the basics of the genetic testing process.

Learn about genetic testing

Knowledge is power: Discover the information that genetic testing can provide.

Identifying the genetic mutation responsible for an IRD is key to understanding what the changing field of gene therapy research might mean for you. Eye Want 2 Know features a number of genetic testing resources as well as a tool to help you locate a provider in your area to help facilitate genetic testing. Isn’t it time to take your first step toward an answer? Declare “Eye Want 2 Know” today.

Viral vector

The role of the viral vector in today’s gene therapy research.

Scientists are exploring the use of viruses in the delivery of investigational gene therapies. The viral vector is a potential microscopic powerhouse in these efforts—and something you will want to know about!

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Stay informed.

The understanding of IRDs, and the potential for science to address these genetic conditions, is always evolving. Get our newsletter to stay up-to-date.

 

What’s new.

We are constantly connecting with folks in the IRD community to bring new stories to aSharedVision. Check out the latest additions.

 

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Help science advance: Share your inherited retinal disease (IRD) journey with the research community
Help science advance: Share your inherited retinal disease (IRD) journey with the research community

Growing participation in My Retina Tracker, the patient registry from the Foundation Fighting Blindness, helps to expand the scientific community’s understanding of inherited retinal disease (IRD). Read more

Developing investigational gene therapies: A roadmap
Developing investigational gene therapies: A roadmap

Bringing a gene therapy from concept to reality is a complicated process and takes many years. By learning about that process—and seeking out genetic testing—those living with an inherited retinal disease (IRD) may better understand what clinical trials and potential future treatments may mean for them. Read more

Beauty speaks: Raising awareness about retinitis pigmentosa
Beauty speaks: Raising awareness about retinitis pigmentosa

If you were to ask April Lufriu, crowned Mrs. America in 2011 and Mrs. World in 2012, what the secret to her success has been, she wouldn’t hesitate. It is her driving need to raise awareness about the disease that she, her sister, and her children all share—retinitis pigmentosa (RP). Read her story

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In it together.
In it together.

We’ve collected and organized some helpful information for the IRD community. You’ll find it right here.

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