Knowledge is power: Discover the information that genetic testing can provide.
Identifying the genetic mutation responsible for an IRD is key to understanding what the changing field of gene therapy research might mean for you. Eye Want 2 Know features a number of genetic testing resources as well as a tool to help you locate a provider in your area to help facilitate genetic testing. Isn’t it time to take your first step toward an answer? Declare “Eye Want 2 Know” today.
The role of the viral vector in today’s gene therapy research.
Scientists are exploring the use of viruses in the delivery of investigational gene therapies. The viral vector is a potential microscopic powerhouse in these efforts—and something you will want to know about!
We are constantly connecting with folks in the IRD community to bring new stories to aSharedVision. Check out the latest additions.
Like many, Janni’s journey started with a clinical diagnosis—but she didn’t stop there. She turned to genetic testing to discover exactly which gene caused her retinitis pigmentosa (RP). Now, Janni is sharing her story to inspire others to do the same. Hear her story
Diagnosing rare diseases like retinitis pigmentosa (RP), Leber congenital amaurosis (LCA), or choroideremia can be complex. Here are a few of the tools eye care professionals often use along the diagnostic journey. Read more
Growing participation in My Retina Tracker, the patient registry from the Foundation Fighting Blindness, helps to expand the scientific community’s understanding of inherited retinal disease (IRD). Read more