Retinal gene therapy research is bringing hope to the inherited retinal disease (IRD) community.

 
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Inherited retinal diseases (IRDs).

The conditions vary, but those with IRDs may face many similar challenges, including night blindness (nyctalopia), declining vision, or blindness at birth. 

See the conditions

Cutting edge science.

Are you following the always evolving field of gene therapy research? Deepen your understanding of how researchers are approaching IRDs in this fascinating field.

See how the science works

Pinpoint your mutation location.

Science can now decipher which gene is responsible for causing a number of IRDs. Here’s a simple overview to help you understand the basics of the genetic testing process.

Learn about genetic testing

Knowledge is power: Discover the information that genetic testing can provide.

Identifying the genetic mutation responsible for an IRD is key to understanding what the changing field of gene therapy research might mean for you. Eye Want 2 Know features a number of genetic testing resources as well as a tool to help you locate a provider in your area to help facilitate genetic testing. Isn’t it time to take your first step toward an answer? Declare “Eye Want 2 Know” today.

Viral vector

The role of the viral vector in today’s gene therapy research.

Scientists are exploring the use of viruses in the delivery of investigational gene therapies. The viral vector is a potential microscopic powerhouse in these efforts—and something you will want to know about!

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Stay informed.

The understanding of IRDs, and the potential for science to address these genetic conditions, is always evolving. Get our newsletter to stay up-to-date.

 

What’s new.

We are constantly connecting with folks in the IRD community to bring new stories to aSharedVision. Check out the latest additions.

 

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If you were to ask April Lufriu, crowned Mrs. America in 2011 and Mrs. World in 2012, what the secret to her success has been, she wouldn’t hesitate. It is her driving need to raise awareness about the disease that she, her sister, and her children all share—retinitis pigmentosa (RP). Read her story

Eye Want 2 Know: A new genetic testing resource for the inherited retinal disease (IRD) community
Eye Want 2 Know: A new genetic testing resource for the inherited retinal disease (IRD) community

Whenever we uncover an unmet need in the IRD community, we roll up our sleeves and get to work. Introducing Eye Want 2 Know, a deep dive into the importance of genetic testing and the resources that will help you get started. Read on

Stargardt’s designer duo: Bradford and Bryan Manning
Stargardt’s designer duo: Bradford and Bryan Manning

Sometimes it takes a village to give birth to a dream. Of course, a celebrity endorsement never hurts, either. Two blind brothers share their vision with the world. Read more

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In it together.
In it together.

We’ve collected and organized some helpful information for the IRD community. You’ll find it right here.

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