Knowledge is power: Discover the information that genetic testing can provide.
Identifying the genetic mutation responsible for an IRD is key to understanding what the changing field of gene therapy research might mean for you. Eye Want 2 Know features a number of genetic testing resources as well as a tool to help you locate a provider in your area to help facilitate genetic testing. Isn’t it time to take your first step toward an answer? Declare “Eye Want 2 Know” today.
The role of the viral vector in today’s gene therapy research.
Scientists are exploring the use of viruses in the delivery of investigational gene therapies. The viral vector is a potential microscopic powerhouse in these efforts—and something you will want to know about!
We are constantly connecting with folks in the IRD community to bring new stories to aSharedVision. Check out the latest additions.
Growing participation in My Retina Tracker, the patient registry from the Foundation Fighting Blindness, helps to expand the scientific community’s understanding of inherited retinal disease (IRD). Read more
Bringing a gene therapy from concept to reality is a complicated process and takes many years. By learning about that process—and seeking out genetic testing—those living with an inherited retinal disease (IRD) may better understand what clinical trials and potential future treatments may mean for them. Read more
If you were to ask April Lufriu, crowned Mrs. America in 2011 and Mrs. World in 2012, what the secret to her success has been, she wouldn’t hesitate. It is her driving need to raise awareness about the disease that she, her sister, and her children all share—retinitis pigmentosa (RP). Read her story